Build status - In Progress

ARTFL LEFFTDS Longitudinal Frontotemporal Dementia Study (ALLFTD)

Recruiting
30 years - 99 years
All
66 participants needed
1 Location

Brief description of study

The purpose of this study (ALLFTD) is to understand how Frontotemporal Lobar Degeneration (FTLD) syndromes progress over time, and to develop new tools to help with diagnosis and eventual treatment. The study is enrolling patients with FTLD syndromes. Additionally, the study is enrolling healthy members of families where there is a strong family history of FTLD or known FTLD-associated genetic mutation. Participating in the longitudinal arm of ALLFTD involves annual visits to an ALLFTD clinical site. These visits usually span 2-3 days, and involve a neurological exam; tests of memory, behavior, and judgement; a blood draw, imaging of your brain (MRI), and a lumbar puncture (LP). All participants enrolled in ALLFTD will have their DNA (from the blood draw) tested for FTLD-associated genetic mutations.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Frontotemporal Dementia
  • Age: 30 years - 99 years
  • Gender: All
Updated on 04 Aug 2024. Study ID: 842595

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